Disability Studies

The Wounded Storyteller: Body, Illness, and Ethics
Arthur W. Frank
University of Chicago Press - 20.00€ -

Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. Both the collective portrait of a so-called “remission society” of those who suffer from some type of illness or disability and a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory.

Drawing on the work of authors such as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: they abound with moral choices and point to a social ethic.

In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, writing about storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on both his own life during the creation of the first edition and the conclusions of the book itself, Frank reminds us of the power of storytelling as way to understanding our own suffering.

On Crip Time
Kaiya Waerea and Michiel Teeuw (eds.)
Sticky Fingers Publishing - 13.00€ -  out of stock

This publication brings together works produced during the ‘Woke Designers Reading Club: Designing on Crip Time’ programme devised by Kaiya Waerea and Michiel Teeuw in Autumn 2022. Here we gathered to read, watch, listen and write through questions orbiting around how systems of time are enforced to prevent disabled people from accessing the future.

In this publication, you will find a range of unruly resistances. From flowcharts of lives lived and unliveable, to prayer mats, to posters, to diagrams cartographing time, to manifestos for being in a world that is built to erase us.

Designed by converger / Michiel Teeuw
Printed and finished by Sticky Fingers Studio

Featuring Celina Bermudez Vogensen, Claudia Rose Walder, emma kath cullen, Helen Stratford, India Boxall, Lindsey Allen, Michiel Teeuw, Oren Shoesmith, Rabindranath X Bhose, Ray Soller, Ren Sheikh & shreyasi pathak, with an introduction by Kaiya Waerea.

23x18cm finished size, includes an A5 24pp pamphlet, 6 A3 unbound sheets & 1 A3 wrap cover, risograph printed throughout

Ill Feelings
Alice Hattrick
Feminist Press - 18.00€ -  out of stock

An intrepid, galvanizing meditation on illness, disability, feminism, and what it means to be alive.

In 1995 Alice’s mother collapsed with pneumonia. She never fully recovered and was eventually diagnosed with ME, or Chronic Fatigue Syndrome. Then Alice got ill. Their symptoms mirrored their mother’s and appeared to have no physical cause; they received the same diagnosis a few years later. Ill Feelings blends memoir, medical history, biography and literary nonfiction to uncover both of their case histories, and branches out into the records of ill health that women have written about in diaries and letters.

Their cast of characters includes Virginia Woolf and Alice James, the poets Elizabeth Barrett Browning and Emily Dickinson, John Ruskin’s lost love Rose la Touche, the artist Louise Bourgeois and the nurse Florence Nightingale.

Disfigured: On Fairy Tales, Disability, and Making Space
Amanda Leduc
Coach House Books - 17.00€ -  out of stock

Challenges the ableism of fairy tales and offers new ways to celebrate the magic of all bodies. In fairy tales, happy endings are the norm - as long as you're beautiful and walk on two legs. After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she'll have a happy ending? By examining the ways that fairy tales have shaped our expectations of disability, Disfigured will point the way toward a new world where disability is no longer a punishment or impediment but operates, instead, as a way of centering a protagonist and helping them to cement their own place in a story, and from there, the world.

Through the book, Leduc ruminates on the connections we make between fairy tale archetypes - the beautiful princess, the glass slipper, the maiden with long hair lost in the tower - and tries to make sense of them through a twenty-first-century disablist lens. From examinations of disability in tales from the Brothers Grimm and Hans Christian Andersen through to modern interpretations ranging from Disney to Angela Carter, and the fight for disabled representation in today's media, Leduc connects the fight for disability justice to the growth of modern, magical stories, and argues for increased awareness and acceptance of that which is other - helping us to see and celebrate the magic inherent in different bodies.

Amanda Leduc's essays and stories have appeared in publications across Canada, the US, and the UK. She is the author of the novels The Miracles of Ordinary Men and the forthcoming The Centaur's Wife . She has cerebral palsy and lives in Hamilton, Ontario, where she works as the Communications Coordinator for the Festival of Literary Diversity (FOLD), Canada's first festival for diverse authors and stories.

Beasts of Burden: Animal and Disability Liberation
Sunaura Taylor
The New Press - 26.00€ -  out of stock

A beautifully written, deeply provocative inquiry into the intersection of animal and disability liberation, and the debut of an important new social critic.

How much of what we understand of ourselves as "human" depends on our physical and mental abilities, how we move (or cannot move) in and interact with the world? And how much of our definition of "human" depends on its difference from "animal"?  

Drawing on her own experiences as a disabled person, a disability activist, and an animal advocate, author Sunaura Taylor persuades us to think deeply, and sometimes uncomfortably, about what divides the human from the animal, the disabled from the nondisabled, and what it might mean to break down those divisions, to claim the animal and the vulnerable in ourselves, in a process she calls "cripping animal ethics."  

Beasts of Burden suggests that issues of disability and animal justice--which have heretofore primarily been presented in opposition--are in fact deeply entangled. Fusing philosophy, memoir, science, and the radical truths these disciplines can bring, whether about factory farming, disability oppression, or our assumptions of human superiority over animals, Taylor draws attention to new worlds of experience and empathy that can open up important avenues of solidarity across species and ability. Beasts of Burden is a wonderfully engaging and elegantly written work, both philosophical and personal, by a brilliant new voice. 

Feminist, Queer, Crip
Alison Kafer
Indiana University Press - 23.00€ -  out of stock

In Feminist, Queer, Crip Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world.

Alison Kafer is associate professor of feminist studies, and is the author of Feminist, Queer, Crip (Indiana, 2013). Her work has appeared in a number of journals and anthologies, including Disability Studies Quarterly, Feminist Disability Studies, the Journal of Literary and Cultural Disability Studies, Sex and Disability, and South Atlantic Quarterly. 

Published 2013.

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