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Disability Studies

Disability Studies

Cover of New Infinity

Metatron Press

New Infinity

Bára Hladík

Fiction €15.00

New Infinity is an experimental novella that follows a woman as she lives and dreams her way through the philosophical implications of autoimmune disease. Met by a labyrinth of closing doors, she searches for meaning and connection among fragmented realities and failed relationships, finding infinitude in the healing process of bibliomancy.

Bára Hladík’s New Infinity is a glittering cross-genre debut. Weaving surrealist stories with meditative poetics, Hladík invites you into a dream world of degenerative illness, left disordered by the failures of ableism, medical professionals, and late-stage capitalism. Here, everything runs on sick time. Where physical health and financial resources grow scarce, the restorative possibilities of queer love, divination, and self-reclamation grant a defiant, yet often tenuous, abundance. Alive with Hladík’s boundless insight and wit, New Infinity is a powerful addition to the collective body of disability literature.

“I have been waiting for a book like New Infinity for years: a story of disability that oozes over the edges of ‘personal narrative’ into the surreal logics of bodies that will not be made useful under capitalism. Bára Hladík’s prose delights me with its 21st-century metamorphoses, its waiting-room dream logics, and its mystical invocations of a body in pain. Her poetry is a channel to another dimension, but one that is grounded inside our everyday sensoria—’cracking, pushing, pulsing’ like a spine writhing with snakes. Here, embodiment is never extractable from the institutions and economies whose profits are predicated on the question ‘do I matter if / I am only a pulse’? New Infinity insists upon a different kind of mattering, in which missed connections, improper fusions, and fleeting moments command the careful, caring attention that is too often denied them.” – Liz Bowen, author of Compassion Fountain (Trembling Pillow Press) and Sugarblood (Metatron Press)

“New Infinity is the most incredible fiction. It explodes the boundaries of this form so as to get to the heart of important truths about the phenomenon of physical pain and of human existence itself. While Bára Hladík’s story draws from a personal experience of survival through a struggle unlike any other, it is an entirely universal tale. In taking us into the most intimate spaces of suffering and narrating a story of a woman navigating a true labyrinth, Hladík shows us a way to face life, with the uncertainties it presents to us all. This novel is at once a profoundly moving story, a brilliant act of creativity, and an existential philosophy. It’s a book I will keep close, so as to revisit— for the thrilling inspiration of its liberated uses of form and style, as well as to learn from Hladík’s honest language, her resilient sense of humour, and her ability to capture the surreal beauty of being alive at all. I felt like I was reading Franz Kafka crossed with a fully unconstrained Anne Carson. I haven’t been so impacted by a book in a long time. It has changed my ways of seeing, feeling, and thinking about what it means to be alive.” – Molly Lynch, author of The Forbidden Territory of a Terrifying Woman (Catapult Books, 2023)

“Bára Hladík’s debut book is a blend of poetry and prose that seeks to make sense of a world that is flagrantly hostile and impatient with bodies that neither perform nor conform to the manic impatience of capitalist acceleration. An honest, vibrant, and very real account of a young writer finding a voice.” – Sina Queyras, writer, editor, professor, curator

“Bára Hladík’s New Infinity is a stirring pedagogy, philosophy, and witness. This offering of sick hybridity coils in a long, calm, and exhilarating breath while asking, ‘Do the doctors know how to breathe?’ Yes, Hladík’s prose and poems prompt, pain cosmologies are at once funny and incantatory. Each of New Infinity’s oneiric turns reads the body as an oracle and mirror, reminds us we are atmospheric. I would rather live here in this book, relearn how to breathe, than return to the ‘impossible crank’ of normal.” – Jane Shi, writer, poet, editor, organizer

Bára Hladík is a Czech-Canadian writer, editor and multimedia artist. Born in Ktunaxa Territory, she began her literary studies in the Creative Writing program at Capilano University in 2011. After studying Technical Writing at the British Columbia Institute of Technology, she received her Bachelor of Arts in Literature and Communications from the University of British Columbia in 2016. Her work can be found in Briarpatch Magazine, THIS Magazine, Contemporary Verse 2, Carte Blanche, EVENT Mag, Hamilton Arts and Letters, Bed Zine, Empty Mirror, Cosmonauts Avenue and elsewhere. Bára’s microchapbook Book of Mirrors was selected for the 2019 Ghost City Press Summer Micro-Chap Series and her collaborative artist book Behind the Curtain (Publication Studio, 2018) was an honourable mention for the Scorpion and Felix Prize (2017). New Infinity is Bára’s first book. She is now a guest in Esquimalt, BC.

Cover of The Minor Gesture

Duke University Press

The Minor Gesture

Erin Manning

Essays €25.00

In this wide-ranging and probing book Erin Manning extends her previous inquiries into the politics of movement to the concept of the minor gesture. The minor gesture, although it may pass almost unperceived, transforms the field of relations. More than a chance variation, less than a volition, it requires rethinking common assumptions about human agency and political action. To embrace the minor gesture's power to fashion relations, its capacity to open new modes of experience and manners of expression, is to challenge the ways in which the neurotypical image of the human devalues alternative ways of being moved by and moving through the world—in particular what Manning terms "autistic perception." Drawing on Deleuze and Guattari's schizoanalysis and Whitehead's speculative pragmatism, Manning's far-reaching analyses range from fashion to depression to the writings of autistics, in each case affirming the neurodiversity of the minor and the alternative politics it gestures toward.

I have been enthralled and held by this book! Erin Manning has given us a new theory of bearing, as well as a new elaboration of gesture, going beyond Balzac’s theory and Agamben’s interpretation of it. She doesn’t lament the loss of gesture but celebrates gesture's minoritization.
- Fred Moten

Cover of Efemmera Reissue #7: Cassandra Radical Feminist Nurses Newsletter

Alder & Frankia

Efemmera Reissue #7: Cassandra Radical Feminist Nurses Newsletter

A reissue of the 1982 inaugural Cassandra Radical Feminist Nurses Newsletter: founding members explain their interests, intentions, and goals, and invite other nurses to join them. 

Introductory text by Peggy Chinn, founding member, and also co-author of Peace & Power: A Handbook of Feminist Process.

The Alder & Frankia Efemmera Reissue series amplifies, graphically reinterprets, and shares historic feminist ephemera. What ideas, strategies, and tactics from the past can we inherit to bring forth a feminist future? 

Cover of Sick issue 7

Self-Published

Sick issue 7

Olivia Spring

Poetry €16.00

Writing on navigating the workplace as an ambulatory wheelchair user, how sex work can be a means of survival, re-imagining 'Christina's World', the boundaries of our bodies, an interview with Caren Beilin, poetry, artwork, book recommendations, and much more.

Essays, features, poetry, art, interviews & more from Laura Baliman, Caren Beilin, Amy Berkowitz, Leah M. Bowie, Kaitlin D'Avella, Lindsy Davis, Katherine DeCoste, Yining Fang, Emily Freeman, Maria Gray, Bec Mackenzie, Ariana Martinez, Chloe McGreal, Ryann McKinney, Iyla Owens, Emily Pinkerton, Marin Scarlett, Maya-Gawonii Shabazz-Saleh, Anna Stiles, Maeve Sweeney, & J Min Wang.

SICK is an independent, thoughtful magazine exploring illness and disability, founded & edited by Olivia Spring and designed by Kaiya Waerea. Founded in Norwich, UK in 2019, we are currently based in Maine, USA and London, UK. We typically publish one issue per year.

Cover of Otherhow: Essays and Documents on Art and Disability 1985–2024

Primary Information

Otherhow: Essays and Documents on Art and Disability 1985–2024

Joseph Grigely

Otherhow brings together four decades of writings, lectures, interviews, and documentation of work by the artist Joseph Grigely. Deaf since the age of ten, his art and writing have long questioned and made use of various modes of communication—photographs, handwritten notes, lipreading, newspaper headlines, paintings, and TV captions—to examine and scrutinize the ableism embedded in cultural and media production. From his brilliant series of postcards addressed to Sophie Calle, where he began to formulate a theory on the intersection of disability and art, to his epic lecture “On Failure,” which brings together the poet Keats, “the first woman of fly tying” Helen Shaw, and the filmmaker Andrei Tarkovsky to the same table for a conversation on beauty, Grigely’s writing is erudite, but clear; righteous with fury, but dryly humorous.

An underlying theme throughout are modes of access and how issues of accessibility and their resolution provide a benefit to everyone, not just the disabled. Chapters devoted to art, access, and advocacy underpin the interconnected nature of these issues in a maddening, but ultimately enlightening manner. Letters of complaint, faxes and emails, unpublished op-eds, exhibition proposals, statements on equality and access; each provide a glimpse into how Grigely’s work has been shaped by—or constructed from—the “tangled process” of opening access.

Joseph Grigely, artist, educator, and activist, is currently a Professor of Visual and Critical Studies at the School of the Art Institute of Chicago. He holds a Doctorate in Philosophy from Oxford in English literature and has taught at Gallaudet University, Stanford University, and the University of Michigan. Exhibiting widely in the US and Europe, his most recent show In What Way Wham? was presented at MASS MoCA in 2023–24. His work is in the collections of the Museum of Modern Art (NY), the Whitney Museum of American Art, the Tate Modern, and the Stedelijk Museum, among others.

Cover of How to Tell When We Will Die: On Pain, Disability, and Doom

Hillman Grad Books

How to Tell When We Will Die: On Pain, Disability, and Doom

Johanna Hedva

Essays €18.00

The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to How do you throw a brick through the window of a bank if you can’t get out of bed? It was not long before this essay, “Sick Woman Theory”, became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves and others.

How to Tell When We Will Die expands upon Hedva’s paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal—from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America’s byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness—relying on and fueling ableism—to the detriment of us all.

With the insight of Anne Boyer’s The Undying and Leslie Jamison’s The Empathy Exams, and the wit of Samantha Irby, Hedva’s debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.

Cover of Exhibiting for Multiple Senses

Valiz

Exhibiting for Multiple Senses

Eva Fotiadi

Exhibiting for Multiple Senses looks into artistic and curatorial research practices that emphasize the multisensory character of the human body in the encounter with artworks. For some time now, numerous contemporary artists and curators have moved beyond the primacy of the visual in the experience of art exhibitions. The book discusses this shift by bringing together experimental exhibition-making, curatorial theory, art, design, and museum research, disability activism and crip theory. Its intent is to demonstrate resonances between curatorial theory and practice and between disability and crip art activism. While the latter is still often regarded as relevant for only small portions of visibly disabled people, in recent years neurodiversity and invisible disabilities have proven to be relevant for the sensory experiences of much larger parts of exhibition audiences.

Exhibiting for Multiple Senses shares famous and lesser-known examples of experimental exhibitions as well as of artistic practices linked to exhibitions. By mobilizing the senses of touch, smell, taste, and hearing, as well as applications of multimodal technologies and insights from neuroscience, these examples all explore abilities and possibilities of the complex and diverse sensory apparatus that is the human body.

Contributors: David Bobier, Luca M. Damiani, Stephanie Farmer & Hettie James, Eva Fotiadi, David Gissen & Georgina Kleege, Adi Hollander, Lilian Korner, Elke Krasny, Renata Pękowska, Caro Verbeek

Cover of Ill Feelings

Feminist Press

Ill Feelings

Alice Hattrick

An intrepid, galvanizing meditation on illness, disability, feminism, and what it means to be alive.

In 1995 Alice’s mother collapsed with pneumonia. She never fully recovered and was eventually diagnosed with ME, or Chronic Fatigue Syndrome. Then Alice got ill. Their symptoms mirrored their mother’s and appeared to have no physical cause; they received the same diagnosis a few years later. Ill Feelings blends memoir, medical history, biography and literary nonfiction to uncover both of their case histories, and branches out into the records of ill health that women have written about in diaries and letters.

Their cast of characters includes Virginia Woolf and Alice James, the poets Elizabeth Barrett Browning and Emily Dickinson, John Ruskin’s lost love Rose la Touche, the artist Louise Bourgeois and the nurse Florence Nightingale.