Wayward Lives, Beautiful Experiments

A manifesto exploding what we think we know about disability, and arguing that disabled people are the real experts when it comes to technology and disability.

When bioethicist and professor Ashley Shew became a self-described “hard-of-hearing chemobrained amputee with Crohn’s disease and tinnitus,” there was no returning to “normal.” Suddenly well-meaning people called her an “inspiration” while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don’t want what the abled assume they want—nor are they generally asked. Almost everyone will experience disability at some point in their lives, yet the abled persistently frame disability as an individual’s problem rather than a social one.

In a warm, feisty voice and vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community. To forge a more equitable world, Shew argues that we must eliminate “technoableism”—the harmful belief that technology is a “solution” for disability; that the disabled simply await being “fixed” by technological wizardry; that making society more accessible and equitable is somehow a lesser priority.

This badly needed introduction to disability expertise considers mobility devices, medical infrastructure, neurodivergence, and the crucial relationship between disability and race. The future, Shew points out, is surely disabled—whether through changing climate, new diseases, or even through space travel. It’s time we looked closely at how we all think about disability technologies and learn to envision disabilities not as liabilities, but as skill sets enabling all of us to navigate a challenging world.

Ashley Shew is an associate professor of science, technology, and society at Virginia Tech, and specializes in disability studies and technology ethics. Her books include Animal Constructions and Technological Knowledge and Spaces for the Future (coedited). She lives in Blacksburg, Virginia.

Saidiya Hartman traces the history of the Atlantic slave trade by recounting a journey she took along a slave route in Ghana. Following the trail of captives from the hinterland to the Atlantic coast, she reckons with the blank slate of her own genealogy and vividly dramatizes the effects of slavery on three centuries of African and African American history.

Saidiya Hartman, professor of English and comparative literature at Columbia University, is a scholar of African American literature and cultural history.

Preface by Maboula Soumahoro.

Translated from the English (American) by Maboula Soumahoro (original title: Lose Your Mother. A Journey Along The Atlantic Slave Route, Farrar, Straus and Giroux, 2007).

THE NANCY REAGAN COLLECTION is a response to growing up queer and trans under the rise of HIV-AIDS. Crossing genres and generations, this performance novel remixes the AIDS archive through an ever-spiraling politics and aesthetics of mourning. Alternating chapters offer up a narrative throughline composed of hallucinogenic episodes from the perspective of a nameless, grieving protagonist in the midst of the global carnage of the Reagan dynasty. Part revenge, part fantasy, the book experiments with poetic practices that challenge conceptions of memory and morality, activism and escapism, grief and beauty.

Maxe Crandall is a poet, playwright, and director. He is the author of the chapbooks Emoji for Cher Heart (Belladonna*, 2015) and Together Men Make Paradigms (Portable Press @ Yo-Yo Labs, 2014), and is the founder of the theater company Beautiful Moments in Popular Culture, which produces a poets theater series at the Stud in San Francisco. He has received fellowships from the Poetry Project, Poets House, Lambda Literary, and the Millay Colony for the Arts. Maxe is a lecturer in the Feminist, Gender, and Sexuality Studies Program at Stanford University.

Hackers, scholars, artists and activists of all regions, races and sexual orientations consider how humans might reconstruct themselves by way of technology.

When learning about internet history, we are taught to focus on engineering, the military-industrial complex and the grandfathers who created the architecture and protocol, but the internet is not only a network of cables, servers and computers. It is an environment that shapes and is shaped by its inhabitants and their use.

The creation and use of the Cyberfeminism Index is a social and political act. It takes the name cyberfeminism as an umbrella, complicates it and pushes it into plain sight. Edited by designer, professor and researcher Mindy Seu (who began the project during a fellowship at the Harvard Law School's Berkman Klein Center for the Internet & Society, later presenting it at the New Museum), it includes more than 1,000 short entries of radical techno-critical activism in a variety of media, including excerpts from academic articles and scholarly texts; descriptions of hackerspaces, digital rights activist groups, bio-hacktivism; and depictions of feminist net art and new media art.

Contributors include: Skawennati, Charlotte Web, Melanie Hoff, Constanza Pina, Melissa Aguilar, Cornelia Sollfrank, Paola Ricaurte Quijano, Mary Maggic, Neema Githere, Helen Hester, Annie Goh, VNS Matrix, Klau Chinche / Klau Kinky and Irina Aristarkhova.

Basta Now. Women, Trans & Non-binary in Experimental Music is a non-academic essay by French poet, novelist and music enthusiast Fanny Chiarello. It’s also the first book to be published by Permanent Draft, an all-female record label and micro-press founded by Chiarello & musician Valentina Magaletti, dedicated to promoting contemporary female, non-binary and transgender artists.

Basta Now is essentially a huge (yet admittedly not definitive) overview of 2,371 womxn in the global experimental sound & music scene. It’s been writ ten in playful and compelling prose and stylishly presented with photos, illustrations, and discographies.

“This book has nothing against men, it’s just not about them” (Fanny Chiarello)

To Become Two: Propositions for Feminist Collective Practice offers a narrative of artist Alex Martinis Roe’s research into a genealogy of feminist political practices in Europe and Australia from the seventies until today.

These practices include those of the Milan Women’s Bookstore co-operative; Psychanalyse et Politique, Paris; Gender Studies (formerly Women’s Studies) at Utrecht University; a network in Sydney including people involved in the Sydney Filmmakers Co-operative, Feminist Film Workers, Working Papers Collective, and the Department of General Philosophy at Sydney University; and Duoda – Women’s Research Centre and Ca la Dona, a women’s documentation centre and encounter space in Barcelona.

Drawing from their practices and experiences, Martinis Roe’s research forms a proposal for a transgenerational approach to feminist politics. This is further developed as a practical handbook of twenty new propositions for feminist collective practice, which were formed in collaboration with a network of contributors through experiments with these historical practices.

Ce recueil de textes choisis et inédits en français offre une plongée dans le mouvement féministe américain du début des années 1970 et le rôle déterminant qu'y ont joué les lesbiennes. Entre 1969 et 1974, des textes majeurs du mouvement sont écrits par des collectifs comme les Lavender Menace et des autrices comme Martha Shelley, Willyce Kim, Rita Mae Brown, Judy Grahn ou Sue Katz. En problématisant le genre, la classe, la race et leurs multiples intersections, elles ont défendu des positions révolutionnaires. Cet ouvrage donne aussi à voir les formes graphiques prises par ces textes, témoignant de l'intrépidité et de la radicalité de cette jeunesse homosexuelle féministe.