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Cover of Against Technoableism: Rethinking Who Needs Improvement

W. W. Norton & Company

Against Technoableism: Rethinking Who Needs Improvement

Ashley Shew

€13.00

A manifesto exploding what we think we know about disability, and arguing that disabled people are the real experts when it comes to technology and disability.

When bioethicist and professor Ashley Shew became a self-described “hard-of-hearing chemobrained amputee with Crohn’s disease and tinnitus,” there was no returning to “normal.” Suddenly well-meaning people called her an “inspiration” while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don’t want what the abled assume they want—nor are they generally asked. Almost everyone will experience disability at some point in their lives, yet the abled persistently frame disability as an individual’s problem rather than a social one.

In a warm, feisty voice and vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community. To forge a more equitable world, Shew argues that we must eliminate “technoableism”—the harmful belief that technology is a “solution” for disability; that the disabled simply await being “fixed” by technological wizardry; that making society more accessible and equitable is somehow a lesser priority.

This badly needed introduction to disability expertise considers mobility devices, medical infrastructure, neurodivergence, and the crucial relationship between disability and race. The future, Shew points out, is surely disabled—whether through changing climate, new diseases, or even through space travel. It’s time we looked closely at how we all think about disability technologies and learn to envision disabilities not as liabilities, but as skill sets enabling all of us to navigate a challenging world.

Ashley Shew is an associate professor of science, technology, and society at Virginia Tech, and specializes in disability studies and technology ethics. Her books include Animal Constructions and Technological Knowledge and Spaces for the Future (coedited). She lives in Blacksburg, Virginia.

Published in 2024 ┊ 176 pages ┊ Language: English

recommendations

Cover of Wayward Lives, Beautiful Experiments

W. W. Norton & Company

Wayward Lives, Beautiful Experiments

Saidiya Hartman

Wayward Lives, Beautiful Experiments examines the revolution of black intimate life that unfolded in Philadelphia and New York at the beginning of the twentieth century. In wrestling with the question of what a free life is, many young black women created forms of intimacy and kinship indifferent to the dictates of respectability and outside the bounds of law. They cleaved to and cast off lovers, exchanged sex to subsist, and revised the meaning of marriage. Longing and desire fueled their experiments in how to live. They refused to labor like slaves or to accept degrading conditions of work. Here, for the first time, these women are credited with shaping a cultural movement that transformed the urban landscape. Through a melding of history and literary imagination, Wayward Lives, Beautiful Experiments recovers these women's radical aspirations and insurgent desires.

Cover of New Infinity

Metatron Press

New Infinity

Bára Hladík

Poetry €15.00

New Infinity is an experimental novella that follows a woman as she lives and dreams her way through the philosophical implications of autoimmune disease. Met by a labyrinth of closing doors, she searches for meaning and connection among fragmented realities and failed relationships, finding infinitude in the healing process of bibliomancy.

Bára Hladík’s New Infinity is a glittering cross-genre debut. Weaving surrealist stories with meditative poetics, Hladík invites you into a dream world of degenerative illness, left disordered by the failures of ableism, medical professionals, and late-stage capitalism. Here, everything runs on sick time. Where physical health and financial resources grow scarce, the restorative possibilities of queer love, divination, and self-reclamation grant a defiant, yet often tenuous, abundance. Alive with Hladík’s boundless insight and wit, New Infinity is a powerful addition to the collective body of disability literature.

“I have been waiting for a book like New Infinity for years: a story of disability that oozes over the edges of ‘personal narrative’ into the surreal logics of bodies that will not be made useful under capitalism. Bára Hladík’s prose delights me with its 21st-century metamorphoses, its waiting-room dream logics, and its mystical invocations of a body in pain. Her poetry is a channel to another dimension, but one that is grounded inside our everyday sensoria—’cracking, pushing, pulsing’ like a spine writhing with snakes. Here, embodiment is never extractable from the institutions and economies whose profits are predicated on the question ‘do I matter if / I am only a pulse’? New Infinity insists upon a different kind of mattering, in which missed connections, improper fusions, and fleeting moments command the careful, caring attention that is too often denied them.” – Liz Bowen, author of Compassion Fountain (Trembling Pillow Press) and Sugarblood (Metatron Press)

“New Infinity is the most incredible fiction. It explodes the boundaries of this form so as to get to the heart of important truths about the phenomenon of physical pain and of human existence itself. While Bára Hladík’s story draws from a personal experience of survival through a struggle unlike any other, it is an entirely universal tale. In taking us into the most intimate spaces of suffering and narrating a story of a woman navigating a true labyrinth, Hladík shows us a way to face life, with the uncertainties it presents to us all. This novel is at once a profoundly moving story, a brilliant act of creativity, and an existential philosophy. It’s a book I will keep close, so as to revisit— for the thrilling inspiration of its liberated uses of form and style, as well as to learn from Hladík’s honest language, her resilient sense of humour, and her ability to capture the surreal beauty of being alive at all. I felt like I was reading Franz Kafka crossed with a fully unconstrained Anne Carson. I haven’t been so impacted by a book in a long time. It has changed my ways of seeing, feeling, and thinking about what it means to be alive.” – Molly Lynch, author of The Forbidden Territory of a Terrifying Woman (Catapult Books, 2023)

“Bára Hladík’s debut book is a blend of poetry and prose that seeks to make sense of a world that is flagrantly hostile and impatient with bodies that neither perform nor conform to the manic impatience of capitalist acceleration. An honest, vibrant, and very real account of a young writer finding a voice.” – Sina Queyras, writer, editor, professor, curator

“Bára Hladík’s New Infinity is a stirring pedagogy, philosophy, and witness. This offering of sick hybridity coils in a long, calm, and exhilarating breath while asking, ‘Do the doctors know how to breathe?’ Yes, Hladík’s prose and poems prompt, pain cosmologies are at once funny and incantatory. Each of New Infinity’s oneiric turns reads the body as an oracle and mirror, reminds us we are atmospheric. I would rather live here in this book, relearn how to breathe, than return to the ‘impossible crank’ of normal.” – Jane Shi, writer, poet, editor, organizer

Bára Hladík is a Czech-Canadian writer, editor and multimedia artist. Born in Ktunaxa Territory, she began her literary studies in the Creative Writing program at Capilano University in 2011. After studying Technical Writing at the British Columbia Institute of Technology, she received her Bachelor of Arts in Literature and Communications from the University of British Columbia in 2016. Her work can be found in Briarpatch Magazine, THIS Magazine, Contemporary Verse 2, Carte Blanche, EVENT Mag, Hamilton Arts and Letters, Bed Zine, Empty Mirror, Cosmonauts Avenue and elsewhere. Bára’s microchapbook Book of Mirrors was selected for the 2019 Ghost City Press Summer Micro-Chap Series and her collaborative artist book Behind the Curtain (Publication Studio, 2018) was an honourable mention for the Scorpion and Felix Prize (2017). New Infinity is Bára’s first book. She is now a guest in Esquimalt, BC.

Cover of How to Tell When We Will Die: On Pain, Disability, and Doom

Hillman Grad Books

How to Tell When We Will Die: On Pain, Disability, and Doom

Johanna Hedva

Non-fiction €18.00

The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to How do you throw a brick through the window of a bank if you can’t get out of bed? It was not long before this essay, “Sick Woman Theory”, became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves and others.

How to Tell When We Will Die expands upon Hedva’s paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal—from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America’s byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness—relying on and fueling ableism—to the detriment of us all.

With the insight of Anne Boyer’s The Undying and Leslie Jamison’s The Empathy Exams, and the wit of Samantha Irby, Hedva’s debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.

Cover of Efemmera Reissue #7: Cassandra Radical Feminist Nurses Newsletter

Alder & Frankia

Efemmera Reissue #7: Cassandra Radical Feminist Nurses Newsletter

A reissue of the 1982 inaugural Cassandra Radical Feminist Nurses Newsletter: founding members explain their interests, intentions, and goals, and invite other nurses to join them. 

Introductory text by Peggy Chinn, founding member, and also co-author of Peace & Power: A Handbook of Feminist Process.

The Alder & Frankia Efemmera Reissue series amplifies, graphically reinterprets, and shares historic feminist ephemera. What ideas, strategies, and tactics from the past can we inherit to bring forth a feminist future? 

Cover of Ill Feelings

Feminist Press

Ill Feelings

Alice Hattrick

An intrepid, galvanizing meditation on illness, disability, feminism, and what it means to be alive.

In 1995 Alice’s mother collapsed with pneumonia. She never fully recovered and was eventually diagnosed with ME, or Chronic Fatigue Syndrome. Then Alice got ill. Their symptoms mirrored their mother’s and appeared to have no physical cause; they received the same diagnosis a few years later. Ill Feelings blends memoir, medical history, biography and literary nonfiction to uncover both of their case histories, and branches out into the records of ill health that women have written about in diaries and letters.

Their cast of characters includes Virginia Woolf and Alice James, the poets Elizabeth Barrett Browning and Emily Dickinson, John Ruskin’s lost love Rose la Touche, the artist Louise Bourgeois and the nurse Florence Nightingale.

Cover of Exhibiting for Multiple Senses

Valiz

Exhibiting for Multiple Senses

Eva Fotiadi

Essays €25.00

Exhibiting for Multiple Senses looks into artistic and curatorial research practices that emphasize the multisensory character of the human body in the encounter with artworks. For some time now, numerous contemporary artists and curators have moved beyond the primacy of the visual in the experience of art exhibitions. The book discusses this shift by bringing together experimental exhibition-making, curatorial theory, art, design, and museum research, disability activism and crip theory. Its intent is to demonstrate resonances between curatorial theory and practice and between disability and crip art activism. While the latter is still often regarded as relevant for only small portions of visibly disabled people, in recent years neurodiversity and invisible disabilities have proven to be relevant for the sensory experiences of much larger parts of exhibition audiences.

Exhibiting for Multiple Senses shares famous and lesser-known examples of experimental exhibitions as well as of artistic practices linked to exhibitions. By mobilizing the senses of touch, smell, taste, and hearing, as well as applications of multimodal technologies and insights from neuroscience, these examples all explore abilities and possibilities of the complex and diverse sensory apparatus that is the human body.

Contributors: David Bobier, Luca M. Damiani, Stephanie Farmer & Hettie James, Eva Fotiadi, David Gissen & Georgina Kleege, Adi Hollander, Lilian Korner, Elke Krasny, Renata Pękowska, Caro Verbeek