Wayward Lives, Beautiful Experiments

A manifesto exploding what we think we know about disability, and arguing that disabled people are the real experts when it comes to technology and disability.

When bioethicist and professor Ashley Shew became a self-described “hard-of-hearing chemobrained amputee with Crohn’s disease and tinnitus,” there was no returning to “normal.” Suddenly well-meaning people called her an “inspiration” while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don’t want what the abled assume they want—nor are they generally asked. Almost everyone will experience disability at some point in their lives, yet the abled persistently frame disability as an individual’s problem rather than a social one.

In a warm, feisty voice and vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community. To forge a more equitable world, Shew argues that we must eliminate “technoableism”—the harmful belief that technology is a “solution” for disability; that the disabled simply await being “fixed” by technological wizardry; that making society more accessible and equitable is somehow a lesser priority.

This badly needed introduction to disability expertise considers mobility devices, medical infrastructure, neurodivergence, and the crucial relationship between disability and race. The future, Shew points out, is surely disabled—whether through changing climate, new diseases, or even through space travel. It’s time we looked closely at how we all think about disability technologies and learn to envision disabilities not as liabilities, but as skill sets enabling all of us to navigate a challenging world.

Ashley Shew is an associate professor of science, technology, and society at Virginia Tech, and specializes in disability studies and technology ethics. Her books include Animal Constructions and Technological Knowledge and Spaces for the Future (coedited). She lives in Blacksburg, Virginia.

Saidiya Hartman traces the history of the Atlantic slave trade by recounting a journey she took along a slave route in Ghana. Following the trail of captives from the hinterland to the Atlantic coast, she reckons with the blank slate of her own genealogy and vividly dramatizes the effects of slavery on three centuries of African and African American history.

Saidiya Hartman, professor of English and comparative literature at Columbia University, is a scholar of African American literature and cultural history.

Preface by Maboula Soumahoro.

Translated from the English (American) by Maboula Soumahoro (original title: Lose Your Mother. A Journey Along The Atlantic Slave Route, Farrar, Straus and Giroux, 2007).

A fascinating account of Lankton's inquisitive, sociological and emotional ruminations in advance of her gender-affirming surgery.

This is one of the earliest of Greer Lankton's (1958-96) journals, sketchbooks and daybooks to appear in the artist's archives, and the first to be published in facsimile form. Written during her time as an art student at the School of the Art Institute of Chicago, the journal offers key insights into Lankton's mind at work before her career-defining move to New York in 1978, where she would become an important figure of the East Village art scene in the 1980s and early '90s with her lifelike dolls and theatrical sets.

Containing drawings, behavioral diagrams and aspirational, occasionally confessional writing, the journal is a record of imagining the body and mind reconciled through transformation. In these pages, the 19-year-old turns an inquisitive, sociological eye toward the emotional landscape and somatic effects of the days recorded here; days leading up to her decision to undergo hormone treatment and gender-affirming surgery in 1979. Lankton reflects with raw vulnerability and keen self-awareness on critical questions of self-image, social perception, gender normativity and human behavior.

A wry, cinematic tour through multiple forms: the poem, the vignette, the play—all set in our laughably lamentable contemporary world.

In three poems, one play, and three short stories, Stéphane Bouquet's Common Life offers a lively, searching vision of contemporary life, politics, and sociality. At a moment at which the fabric of everyday social life is increasingly threatened across the globe, this book is a necessary exercise of the literary imagination: what, it asks, does it mean to inhabit the world together today? With humor and sincerity, Common Life imagines the utopias of collectivity, friendship and love that might enable hope for the present and the future.

Translated by Lindsay Turner

Chickens have a collective soul. Heaven is full of the skateboarders you kissed in middle school. If the algorithm is its own hell, Lauren Cook, author of the critically (and uncritically) acclaimed Sex Goblin, stands in front of it fully armored. I Love Shopping invites its readers to inhabit a world just like ours, reflected through a big, benevolent funhouse mirror.

First published in a limited edition, this is the first trade edition of the cult classic.

In this bold new work of cultural criticism, Ann Cvetkovich develops a queer approach to trauma. She argues for the importance of recognizing—and archiving—accounts of trauma that belong as much to the ordinary and everyday as to the domain of catastrophe. An Archive of Feelings contends that the field of trauma studies, limited by too strict a division between the public and the private, has overlooked the experiences of women and queers. Rejecting the pathologizing understandings of trauma that permeate medical and clinical discourses on the subject, Cvetkovich develops instead a sex-positive approach missing even from most feminist work on trauma. She challenges the field to engage more fully with sexual trauma and the wide range of feelings in its vicinity, including those associated with butch-femme sex and aids activism and caretaking.  

An Archive of Feelings brings together oral histories from lesbian activists involved in act up/New York; readings of literature by Dorothy Allison, Leslie Feinberg, Cherríe Moraga, and Shani Mootoo; videos by Jean Carlomusto and Pratibha Parmar; and performances by Lisa Kron, Carmelita Tropicana, and the bands Le Tigre and Tribe 8. Cvetkovich reveals how activism, performance, and literature give rise to public cultures that work through trauma and transform the conditions producing it. By looking closely at connections between sexuality, trauma, and the creation of lesbian public cultures, Cvetkovich makes those experiences that have been pushed to the peripheries of trauma culture the defining principles of a new construction of sexual trauma—one in which trauma catalyzes the creation of cultural archives and political communities.

Drawing on a range of sources, including the fiction of Toni Morrison and Luisa Valenzuela (He Who Searches), Avery Gordon demonstrates that past or haunting social forces control present life in different and more complicated ways than most social analysts presume. Written with a power to match its subject, Ghostly Matters has advanced the way we look at the complex intersections of race, gender, and class as they traverse our lives in sharp relief and shadowy manifestations.

“Ghostly Matters immediately establishes Avery Gordon as a leader among her generation of social and cultural theorists in all fields. The sheer beauty of her language enhances an intellectual brilliance so daunting that some readers will mark the day they first read this book. One must go back many more years than most of us can remember to find a more important book.” —Charles Lemert